Living Fully: Jennifer and Kennedy Swann’s Inspiring Journey of Purpose and Resilience

In this heartfelt episode of Her Unshakeable Confidence, hosts Simone and Olivia Knego welcome Jennifer and Kennedy Swann to share their inspiring journey of resilience, advocacy, and living fully. Jennifer opens up about navigating the complexities of parenting a child with spinal muscular atrophy (SMA), the difficult medical decisions their family faced, and the transformative power of embracing life authentically.

Fifteen-year-old Kennedy shares her unique experiences, including how she communicates using an Eye Gaze device, her love of social connections, and the role technology plays in empowering her voice. The Swann family’s story highlights the importance of perspective, the power of community, and the joy of living fully through challenges.

🚀 Actionable Takeaways

1. 🎯 Authenticity is key.
Celebrate mistakes and imperfections as part of what makes you unique.

2.💻 Technology can be empowering.
Assistive tools like the Eye Gaze device enable individuals with disabilities to communicate effectively and thrive.

3.🌟 Social connections matter.
Building relationships with peers is vital for emotional well-being, especially for teenagers like Kennedy.

4.🛳️ Cherish family experiences.
A family Disney cruise became a pivotal moment, teaching the Swanns the value of embracing joy and adventure.

5.👩‍👧 Support systems are essential.
Family dynamics and community support play a crucial role in overcoming life’s obstacles.

6.📖 Perspective shapes resilience.
Adopting a positive outlook helps navigate challenges and find fulfillment in everyday life.

7.🎙️ Empowerment through storytelling.
Sharing personal journeys inspires others and builds connection and understanding.


📖 Chapters
00:00 – Introduction and Background
07:41 – Navigating Medical Decisions
18:44 – The Turning Point: A Disney Cruise
28:32 – Lessons Learned and Advice for Others


👩‍💼 About Jennifer and Kennedy Swann
Jennifer Swann is a constitutional lawyer turned special needs mom and advocate who has found her purpose and passion in sharing her journey as the mother of a child living with a life-threatening neuromuscular disease. She shares her insights, 15 years in the making, on her daughter’s superpower of living to her fullest potential, despite the fact that she cannot move, and requires seven machines every day just to stay alive. Kennedy is an inspiring 15-year-old whose courage and determination shine through her unique communication methods, social connections, and zest for life. 

Jennifer leverages her many years on stage as a musical theater performer and her passion for personal development to deliver inspirational, heartfelt, and relatable content to her followers and listeners.  She is widely regarded as a naturally gifted speaker who connects with her audiences by sharing honestly and vulnerably about her own path to empowered living. Jennifer and her daughter have been featured on multiple prominent local media outlets, including KCAL News and the Voice of OC. 

👉 Connect with Jennifer and Kennedy Swann
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Meet Simone Knego

Simone Knego is an international speaker, award-winning author and two-time TEDx Speaker. Her work has been featured on ABC, NBC, and CBS and in Entrepreneur Magazine and Yahoo News. Her literary contributions have been honored by the National Indie Excellence Award and the NYC Big Book Award. Simone has not only summited Mt. Kilimanjaro, but she is also the heart of a bustling household with six children, three dogs, and one husband of 31 years. As the creator of the REAL Method, Simone continues to inspire and impact teams, fostering growth, and promoting self-discovery. 

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